Volunteers 2017-05-07T10:08:51+00:00

Learning Disability Carers Community is the opposite of a culture that has lots of processes, lots of bureaucracy and slow decision-making

 

 

 

We would love to find people who will help us fill the following roles

 

Secretary

 

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Fund Raiser

 

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Bid Writer

 

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Researcher

 

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 Our Volunteers

Our Founder

Sue Kellett

Sue’s oldest daughter has mild to moderate LD, her granddaughter also has LD alongside other health issues. Both live with Sue.

Passionate about carers rights, and frustrated by many issues surrounding care for LD people, she started Learning Disability Carers Community in March 2013 which now supports in excess of 10,000 people nationally.

At a local level, Sue is bringing groups together to instigate change, including the health survey and campaigning against the cuts to funding, services and support.  She is an elected carer rep and chair of the North Derbyshire Partnership Board.  She is also on the board of DSEB (Derbyshire Stakeholder Engagement Board) which co produces education for adult care.

Healthcare Volunteer

Margaret Tyson

Margaret has a PhD in biology and Masters in public health and is an honorary cancer researcher. She is interested in researching all aspects of learning disability.

Her daughter Karen, who had LD, was moved from home following an assessment of capacity under the Mental Capacity Act 2005.  Karen lost her life to breast cancer at the age of 44 even though she attended for annual health checks. This is why Margaret was more than happy to work with LDCC to create the Annual Health Checks survey.

She also runs “Karen’s Page“, a site dedicated to informing families of people with LD what problems they may encounter, and help to prevent a similar tragedy happening to them.