I’d like to draw your attention to this important survey – a chance for all children, young people, families, clinicians and researchers to have a say in what research should be done on interventions for disabled children and their families. JLA surveys have a major effect on national research funding, which will ultimately affect what we do in practice – so please do have your say!
Childhood Disability Research Survey Now Open!
https://www.research.net/s/JLACDRPSP_researchideas (cut and paste into your address bar)
The aim of the JLA Childhood Disability Research Priority Setting Partnership is to identify and prioritise unanswered questions about the effectiveness of ‘interventions’ for children and young people affected by ‘neurodisability’. The views of young people, families and health professionals not involved in research are central to this project.
The survey aims to identify a broad range of ideas for ways to improve the health and/or wellbeing of disabled children and young people. The scope is very broad. There are more brief details and some examples in the introduction to the survey.
The survey can be completed electronically through the link https://www.research.net/s/JLACDRPSP_researchideas , or on the Word document attached which can be either emailed or posted back to the JLA PSP. The survey will remain open until the summer.
Please forward the invitation to take part as widely as possible so that as many people as possible have the opportunity to take part. You might want to use your social networking sites to post the invitation directly, or direct people the JLA Childhood Disability Research Priority Setting Partnership website http://www.bacdis.org.uk/research/psp.htm