Learning Disability Carers Community is dynamic and built on “doing and improving” to defend the rights and lives of people with learning disabilities, their carers and families. It is carer led and run.
We hold regular meetings in the Chesterfield area. If you feel you can contribute positively why not come along to our next one? We’re a friendly bunch and are always grateful for fresh input and ideas.
What will happen to your cared for person if you become unwell or die?
We’ve linked with Willing It Ltd, a specialist writer of Wills and Asset Protection Trusts for carers. They can help ensure that your cared for person will inherit the money they need without affecting their benefits, or having to leave the family home.
I first supported people with learning disabilities and their family carers in 2009, as a researcher on Irelands’ first national inclusive research programme at Trinity College Dublin. After completing my research at Trinity, I sought practical experience of supporting people with learning disabilities and their family carers.
I became a social care worker in a residential home for children with learning disabilities. I learnt a lot about the Irish social care, health and education system in this role. After some extremely distressful experiences during dental and GP appointments I sought quality improvement experience in the health sector.
I moved to London in 2012 where I worked on a pilot study at the Royal College of Psychiatrists. The pilot aimed to measure and improve the quality of care for people with learning disabilities in primary, general and mental health care – via a national audit.
In 2015 I moved to Bristol where I did a brief stint at South Gloucestershire local authority as a senior youth worker when Education Health and Care plans were first introduced. I thoroughly enjoyed working with families, young people and schools, but found it very difficult to work in the council.
Two years ago I joined The Family Carer Support Service (FCSS) at Hft– which I now manage. FCSS is a national charity supporting family carers of an adult with a learning disability and autism. We support families to understand and exercise their rights, unpick difficulties and find solutions.