You are not alone in your role as a carer of a learning disabled person.
As carers ourselves with family members who are learning disabled, we felt quite strongly that the needs of people who care for someone with a learning disability are not met – largely because they haven’t been identified.
The problems and difficulties we encounter on a daily basis in our roles as carers led to us starting a local support group and online community where people like us could come for help and advice.
Our volunteers manage every aspect of this site, dedicating many hours to its success. We love to hear from you and will always do our best to answer any queries or questions you may have, or to respond to comments as quickly as possible.
We are based in Chesterfield, although the resources and support we offer is available to everyone.
To get the most out of the site, it’s best to register.
What will happen to your cared for person if you become unwell or die?
We’ve linked with Willing It Ltd, a specialist writer of Wills and Asset Protection Trusts for carers. They can help ensure that your cared for person will inherit the money they need without affecting their benefits, or having to leave the family home.
The authors of this article write convincingly that it is time to revisit the way in which learning disability is defined suggesting that clinical judgement be used rather than it being largely dependent upon IQ score.
The case story used to illustrate their argument will resonate with many parent carers; especially those who find that their child once out of special education is cast adrift with no or very limited support and services.